Jeremy and Michelle

My husband got shingles in November. He has an auto immune disease called Crohn's. It affects his digestive system and for him particularly his small intestine. We visited his specialist in October around the time Henry finished the induction phase of chemo.  Jeremy asked if he should get the shingles vaccine which I don't remember him ever mentioning before but his doctor said it was a good idea.  Henry got his flu shot while he was knocked out for a lumbar puncture and bone marrow biopsy the next day and the rest of us all got ours the week before.  We played at Lagoon for Frightmares and made a family trip out of all the doctor appointments. We also bought a new to us van with half the miles our old one had.  I had had a nasty cold that I was finally feeling better from so had stayed away from Henry trying to keep him from getting it but while we were driving home he got a fever which we are supposed call and go into an ER for.  We were caravanning home so Je...

When we were in the hospital in September the doctor said that we would see Henry improve once he started the chemo.  It seems counter intuitive because chemo meds are basically poison.  The first week after chemo he stopped having fevers as much and we were able to manage his pain until he didn't need much for pain medicine. The second week he has lost more weight and been in pain again and of course he had some serious hunger and anger from the steroid.  This week I feel like we are seeing our little boy again.  Mostly his personality. On Sunday he was happy and cheery. He got a tiny pumpkin from my mom and wanted to carve it and then went on a 4 day stretch of "have to carve pumpkins" fever. I don't know if it is still part of being bored or even some residual steroid fervor but he was adamant and we even went to the pumpkin patch and got more for everyone 😆.  Jeremy was making a second dinner because Henry wanted two different things and he sent our other s...