Birthdays

Our little boy turned one yesterday. We had some family and friends over for a little celebration and thankfully my husband planned and prepared everything. The cake was a cute little number 1 shape and Jeremy even made a tiny 1 for Oliver to eat all by himself. He made a huge mess (well not much more of a mess than when he eats the rest of his meals). He got a few toys clothes and books. The walker/rider he got was really fun this morning when he pushed it around and climbed on it and actually walked with it.

Comments

Post a Comment

Popular posts from this blog

Seeing a bit of Light

When we were in the hospital in September the doctor said that we would see Henry improve once he started the chemo.  It seems counter intuitive because chemo meds are basically poison.  The first week after chemo he stopped having fevers as much and we were able to manage his pain until he didn't need much for pain medicine. The second week he has lost more weight and been in pain again and of course he had some serious hunger and anger from the steroid.  This week I feel like we are seeing our little boy again.  Mostly his personality. On Sunday he was happy and cheery. He got a tiny pumpkin from my mom and wanted to carve it and then went on a 4 day stretch of "have to carve pumpkins" fever. I don't know if it is still part of being bored or even some residual steroid fervor but he was adamant and we even went to the pumpkin patch and got more for everyone 😆.  Jeremy was making a second dinner because Henry wanted two different things and he sent our other s...
Read more

Saturday

Image
Henry has been pretty ornery in the middle of the night and today. He is sick of blood pressures, blood work, the pulse ox finger thing and any nurse or doctor or tech that comes in that isn't mommy or daddy.  I just want to express how greatful I am right now for the kind man who came in to do an x ray.  There has been a concern that Henry is constipated. With his meds slowing things down and the possibility of infection from a hard bowel movement causing micro tears in his bowel they have been telling g us he needs stool softener and we keep telling them that he really doesn't have much to poop. He hasn't eaten much since before we came and less after. The nurse told us the doctor ordered an x ray to see how much is in there, at least that is what I assumed because they didn't mention the order.  This man who did the x ray was so kind and gentle. Henry yelled and didn't want him to touch him or move him. The tech guided me how to position Henry and also made sure ...
Read more

Second Transfusion

Setting up a transfusion across state lines and with various doctors can seem complicated and overwhelming.  Thankfully at Primary Children's Hospital they set you up with a case manager/care coordinator.  She took care of everything and then called to tell me I should be hearing from some one at EIRMC soon.  I gave it a couple hours and called them. They said they needed orders from a doctor and still hadn't received them. I called our awesome case manager and she said because they don't have rites to have a doctor in Utah send over an order to a hospital in Idaho they needed to talk to our primary caregiver/family doctor and have them send the orders over. So I called our family doctor except it's Friday and the main doctor we see is out of the main office at a different facility this Friday. I left a message with them to call back.  Having had experience in the past we knew that once the doctor's office/clinic in Utah/hospital doctors go home on Friday our chan...
Read more